12/06/2005
I wrote a post awhile back about my step-dad who has Alzheimers. I was home visiting over the weekend so I got to spend some time with him. Sometimes I don't know how my mom does it, being his wife, his caregiver, his boss, his mother. That's what Alzheimers does, it takes away everything you know, everything you've learned, and turns you back into a kid that doesn't remember how to tie their shoes, take a shower, make a meal. It's heart breaking to see someone that once was so self reliant turn into a person that must depend on everyone else to survive. My mom gets so frustrated and she feels cheated. Her life now revolves around him whether she wants it that way or not. She loves my step-dad but she's only been married to him for 8 years so her time with him, healthy, has been limited. I guess it's harder to give up your life for someone that hasn't been present in your life forever. I wonder, if we knew that the days we spent with someone were limited, would we spend them differently? My step-dad tries desperately to remember his life, while my mom tries to forget hers. Some of us think remembering will set us free, some of us know forgetting is our only savior. If we had a choice, which would we choose, remembering or forgetting?
Years before that, I remember being at my Grandparents apartment for dinner (I was in my teens) and a great aunt was also there... she'd had the illness for some time by then. At one point during the meal, she lifted the tablecloth (well, it was a long time ago) above her head, sending everything crashing to the floor, and claiming that she was looking for her handbag! We all just stared in complete disbelief, but then I admit we burst out laughing. I think it was nervous laughter, though!
WDKY, sometimes it is funny, as insensitive as that sounds, when my step dad comes out with his shoes on the wrong feet part of me wants to laugh, the other part kicks myself in the butt for thinking it's funny. Sometimes laughing is all we can do.
I had a grandmother who had Alzheimers. I can't even image how hard it would be living with that on a daily basis.